Diagnosed with a large brain cyst, may need brain surgery?

You are one of the more memorable names here to me.

Columbia, Belgium, You'll be Gucci.

You'll be just fine, don't even stress it bruh.
 
Wow man best wishes for you man I hope everything turns out decent for you dude..God will show you the way just stay with him thru this and receive his positive guidance... Best wishes man
 
IlluminatiNYC said:
 
Arachnoid cysts are a congential condition and are typically benign.  Many people who have them can be completely asymptomatic, but there are occasions where the cyst may be putting pressure on a certain part of the brain resulting in seizures, hallucinations and sometimes partial paralysis or numbness on one side of the body (like it seems in your case).

What they'll probably do is a craniectomy, where they open up a portion of your skull to access the cyst and then drain it to relieve the pressure.  I'm an attorney and not a neurosurgeon but I'm actually handling a case right now where the guy had an arachnoid cyst.
Click to expand...
Yeah normally they're pretty harmless but everything is pointing towards the cyst putting pressure on a numer of areas as of recently.

The doc explained various ways of handling cysts but I may need something more complex than a simple drain because of its very close proximity to my brain stem.

I'm used to various kinds of surgery but the thought of them having to check out my brain idk, it's different.

The good thing is that if this cyst is indeed the reason for a number of my problems I might be able to do a lot more than I ever could.

For example my lack of depth vision, not being able to catch anything, bad eyesight (all since birth) might actually get a lot better if the cyst was the reason for all those things.

Thank you everyone for all the support
 
Last edited:
^ damn man thats crazy. I have seizures and on all my scans the only abnormality the docs ever found was a benign arachnoid cyst (like IlluminatiNYC mentioned), fortunately it never got as far as LP or surgery.

And yes a cyst that large in that area of the brain might be pushing on your primary visual cortex and/or optic nerves (I think my anatomy is correct) would cause your visual issues.

Good luck dude. You have my prayers for a speedy recovery. Keep us updated!
 
frink85 said:
^ damn man thats crazy. I have seizures and on all my scans the only abnormality the docs ever found was a benign arachnoid cyst (like IlluminatiNYC mentioned), fortunately it never got as far as LP or surgery.

And yes a cyst that large in that area of the brain might be pushing on your primary visual cortex and/or optic nerves (I think my anatomy is correct) would cause your visual issues.

Good luck dude. You have my prayers for a speedy recovery. Keep us updated!
Click to expand...
I'll try and get all of my medical reports mailed to me in the next week so I can post the scan. And yeah your anatomy is correct, that's pretty much what the doc said.
 
If you are going to have a intracranial mass thats usually one of the best ones to have. Its mostly remains asymptomatic throughout life. If it causes symptoms they just need to drain it. Dony have to worry about malignant degeneration or metastasis. Of course no one want to have brain surgery but they are done frequently.
I see them pretty frequently. Most of the time its just an incidental finding that no one does anything about. Good luck let me know if you have any questions. Sounds like you described it at the right cerebellopontine angle. Are you having hearing troubles?

It should follow CSF signal on all sequences of your mri
 
Last edited:
UTVOL23 said:
If you are going to have a intracranial mass thats usually one of the best ones to have. Its mostly remains asymptomatic throughout life. If it causes symptoms they just need to drain it. Dony have to worry about malignant degeneration or metastasis. Of course no one want to have brain surgery but they are done frequently.
I see them pretty frequently. Most of the time its just an incidental finding that no one does anything about. Good luck let me know if you have any questions. Sounds like you described it at the right cerebellopontine angle. Are you having hearing troubles?
Click to expand...
NT attending physician 
pimp.gif
 
Holy damn man I really hope you pull thru OP.
eek.gif
mean.gif
Stay strong bruh and update this when you come thru the other side!!
 
Question for my Jeep...

So the surgery goes well..


Will you be able to maintain your balance better?

It was those complications due to the lung?
 
UTVOL23 said:
If you are going to have a intracranial mass thats usually one of the best ones to have. Its mostly remains asymptomatic throughout life. If it causes symptoms they just need to drain it. Dony have to worry about malignant degeneration or metastasis. Of course no one want to have brain surgery but they are done frequently.
I see them pretty frequently. Most of the time its just an incidental finding that no one does anything about. Good luck let me know if you have any questions. Sounds like you described it at the right cerebellopontine angle. Are you having hearing troubles?

It should follow CSF signal on all sequences of your mri
Click to expand...
damb...

I was about to say that but he beat me to it.

*snaps fingers*
 
UTVOL23 said:
If you are going to have a intracranial mass thats usually one of the best ones to have. Its mostly remains asymptomatic throughout life. If it causes symptoms they just need to drain it. Dony have to worry about malignant degeneration or metastasis. Of course no one want to have brain surgery but they are done frequently.
I see them pretty frequently. Most of the time its just an incidental finding that no one does anything about. Good luck let me know if you have any questions. Sounds like you described it at the right cerebellopontine angle. Are you having hearing troubles?

It should follow CSF signal on all sequences of your mri
Click to expand...
Yeah it was incidentally found on an MRI a year or 2 ago because I had trouble sleeping and couldn't function properly during the day. I had random memory loss, couldn't concentrate properly, cycled off the road a few times or into people, ...

My pupils were also completely unreactive to light at times so I saw a neurologist. Besides the cyst everything checked out so we attempted sleeping medication first and all those symptoms disappeared when I got some good sleep so it hasn't been a relevant issue until recently.

I asked my doctor if I could get all my medical reports mailed to me but he says he can't do so because it's located on an internal network etc. I'd have to manually get the documents at the hospital. I don't have hearing problems, just nervous system and visual problems. The neuropsychiatrist also said a drain isn't that bad but the location of my cyst, particularly the fact it's around my brainstem, could make it more complicated.

What about recovery times, side effects etc. if I do indeed require surgery?
Fontaine said:
Question for my Jeep...

So the surgery goes well..


Will you be able to maintain your balance better?

It was those complications due to the lung?
Click to expand...
The problem for now is nobody can really pinpoint a lot of my symptoms to anything. The cyst causing it is a hypothesis for now but it would explain literally everything.

The balance problem appeared a few weeks after my lung surgery so I figured it was a side effect of being in surgery for a long time but apparently that's quite rare and the cyst seems like a better guess for a cause. Hopefully they'll be able to determine what exactly the cyst is doing, if anything, in August. 
 
Last edited:
Colombia said:
Yeah it was incidentally found on an MRI a year or 2 ago because I had trouble sleeping and couldn't function properly during the day. I had random memory loss, couldn't concentrate properly, cycled off the road a few times or into people, ...
My pupils were also completely unreactive to light at times so I saw a neurologist. Besides the cyst everything checked out so we attempted sleeping medication first and all those symptoms disappeared when I got some good sleep so it hasn't been a relevant issue until recently.
I asked my doctor if I could get all my medical reports mailed to me but he says he can't do so because it's located on an internal network etc. I'd have to manually get the documents at the hospital. I don't have hearing problems, just nervous system and visual problems. The neuropsychiatrist also said a drain isn't that bad but the location of my cyst, particularly the fact it's around my brainstem, could make it more complicated.

What about recovery times, side effects etc. if I do indeed require surgery?

The problem for now is nobody can really pinpoint a lot of my symptoms to anything. The cyst causing it is a hypothesis for now but it would explain literally everything.
The balance problem appeared a few weeks after my lung surgery so I figured it was a side effect of being in surgery for a long time but apparently that's quite rare and the cyst seems like a better guess for a cause. Hopefully they'll be able to determine what exactly the cyst is doing, if anything, in August. 
Click to expand...

Hard to know exactly without knowing a specific location and how much mass effect it is causing. If its at the right cpa they can just come in from a retro mastoid approach but it also matters how large it is. Really hard to say much without knowing an exact location. Saw one the other day that they were planning surgery on that was 4.5 cm in the right cpa that was displacing the 7th amd 8th nerves and compressing the inferrior cerebellar peduncle. Small changes in position can affect different cranial nerves and change operative approaches. Your surgeons would know best.
 
UTVOL23 said:
Hard to know exactly without knowing a specific location and how much mass effect it is causing. If its at the right cpa they can just come in from a retro mastoid approach but it also matters how large it is. Really hard to say much without knowing an exact location. Saw one the other day that they were planning surgery on that was 4.5 cm in the right cpa that was displacing the 7th amd 8th nerves and compressing the inferrior cerebellar peduncle. Small changes in position can affect different cranial nerves and change operative approaches. Your surgeons would know best.
Click to expand...
I see. Problem is I need to wait until the 22nd to get neurological monitoring to determine what exactly the cyst is doing.

My gym is only a mile away from the hospital I go to so I'll try and ask if I can take my medical records home somehow or at least have a look at them.
 
Damn I'm praying for u. Keep us updated burrr
 
Colombia said:
I see. Problem is I need to wait until the 22nd to get neurological monitoring to determine what exactly the cyst is doing.
My gym is only a mile away from the hospital I go to so I'll try and ask if I can take my medical records home somehow or at least have a look at them.
Click to expand...

I wouldn't post your medical chart online though
 
I've had a mucocele cyst on my lower lip, the inside part. It was the size of a jellybean.


I had it surgically removed, he had to cut of a piece of my lip, which is noticeable if I do a kiss face or smile too much. Basically how it was explained to me, it was a group of cells that do nothing but keep multiplying, and then stop. Since the growing stopped, it was deemed not to be cancerous, however they still sent it in for a biopsy and it came back as not cancerous.



Idk what to tell ya, it sucks man. For a good month or two I thought I had cancer and it sucks I just got out of high school and was panicking. Got depressed immediately and didn't leave my home, kept staring into the mirror seeing if it grows back, every ache or pain you think it spread to that area. The worst feeling ever waiting for the results.



Good luck man, stay strong
 
UTVOL23 said:
I wouldn't post your medical chart online though
Click to expand...
I'd remove my name and any other personal details etc of course but other than that I don't have a problem with people being able to see my medical records.

I was at the gym yesterday so I went to inquire about getting my records at the hospital but apparently the front desk can't help me and I'd need to collect the paperwork from the various doctors who performed the tests etc. So basically by the time I'd get to see any of it I wouldn't be far removed from the 22nd.

I'm already curious about the bill though. Just the other day my bill from my stay at the mental ward came in and it was €2000.

It's all faulty too. Some medication I received like Zyprexa isn't listed but on the other hand they charged €100 for 10 Ambien pills, of which I only received 4 or 5.

My dad's work insurance covered 100% for anything related to my lung surgery but they passed since they couldn't consider the psychosis related and I had to use my regular insurance, which is only like 70% coverage. My dad's work insurance offers 100% coverage on anything related to a major medical illness (they refuse mental illnesses) so my current plan is to get them to cover the neurological monitoring and possible brain surgery and then I can also include the bill from the mental ward under that coverage as it would be directly related to the brain issue.
 
Last edited:
UTVOL23 said:
Hard to know exactly without knowing a specific location and how much mass effect it is causing. If its at the right cpa they can just come in from a retro mastoid approach but it also matters how large it is. Really hard to say much without knowing an exact location. Saw one the other day that they were planning surgery on that was 4.5 cm in the right cpa that was displacing the 7th amd 8th nerves and compressing the inferrior cerebellar peduncle. Small changes in position can affect different cranial nerves and change operative approaches. Your surgeons would know best.
Click to expand...
 while your posting.... Why dont doctors ever get sick or get cancer or need surgery like other citizens? I never heard of a doctor breaking there arm or leg

If you happen to get sick or need a doctor where would you go
 
Superb said:
 while your posting.... Why dont doctors ever get sick or get cancer or need surgery like other citizens? I never heard of a doctor breaking there arm or leg


If you happen to get sick or need a doctor where would you go
Click to expand...

Doctor are cautious very well educated ppl...alot of.them live very easy treading life's as well so there you.go..you don't no more than ten docs and neither do most so theres no way to no if.they do or not..

Now presidents and all that I believe are vaccined for every thing under the sun...but docs no way too many
 
Stay strong OP!

Stay positive and I hope everything works out for you man. Keep your head up
 
Stay strong OP, keep those positive vibes coming your way.

Hoping everything works in your favor.
 
You must log in or register to reply here.

Similar threads

youngwolf
They Found a Worm in a Woman’s Brain
Replies
4
Views
948
biggie62
biggie62
feeninlikejodeci
Have You Ever Seen A Dermatologist?
Replies
13
Views
1K
Donky
D
Davey Magoo
Does weed give you a hangover?
Replies
7
Views
1K
kingkoopa
kingkoopa
you go boy
Need your Prayers for my Dad
3 4 5
Replies
100
Views
7K
ajiiiplatinum
ajiiiplatinum
cragmatic
DO NOT SELL SHOES ON EBAY
2
Replies
26
Views
2K
purple sneaks
purple sneaks

The ultimate sneaker enthusiast community.

NikeTalk was created as a way of giving back to both the sneaker enthusiast community and to the greater global community of which we are all a part.

NikeTalk is NOT affiliated with Nike Inc. in any way, shape, or form. All opinions expressed herein do not necessarily reflect those of Nike, Inc.

© 1999-2024 NikeTalk.com

Share this page

Back
Top Bottom