solarius49
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I told her mom to keep us posted!
TEAM MALIYAH--HAPPY 3RD BIRTHDAY MALI (on 4/13/13)
- Thread in 'General' Thread starter Started by solarius49,
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I told her mom to keep us posted!
whyhellothere
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I'll let you guys know when she comes home from the hospital on Friday I think!
solarius49
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I'll let you guys know when she comes home from the hospital on Friday I think!
they should be home tomorrow afternoon. I guess she was sick at 1st, but shes doing fine now. I'll update everybody futher tomorrow!
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YOUR AWESOME! THANKS AGAIN!!Bout to donate again.
prayers are with her and her family
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HEY ALL! ITS ME MALIYAH!! JUST WANTED TO LET YOU ALL KNOW THAT TOMORROW MORNING I FINISH MY LAST ROUND OF INTENCE CHEMO! MY MOMMY AND I WILL BE HOME SOMETIME TOMORROW EVENING! I CANT WAIT BECAUSE WE ARE BOTH EXHAUSTED FROM OUR 2ND HOME (CHILDRENS HOSPITAL OF PITTSBURGH)! ANYWAYS, ILL UPDATE MORE TOMORROW...TAKE SOME TIME OUT TO READ THE STORY MY MOM CREATED FOR US BOTH. IT HASNT BEEN UPDATED SINCE JULY, BUT SHE IS WORKING ON IT! WHEN IT IS ALL FINISHED WE WILL HAVE A GREAT TESTIMONY! THANKS FOR THE PRAYERS!
LOVE, MALIYAH
OUR STORY….
Maliyah was an over all very healthy baby. Ate good, played good, and always smiling. Yes of course there where times where she would get a fever or little cold, but after a quick doctor visit and some meds, she got better in no time. From the time she was born until Now, she loves to observe new things and interact with all walks of life. She enjoys coloring, counting, watching Dora the explorer and reading books. During the week I Had work and/or school Maliyah would be in daycare most of the day; Which she had no problem with being as she's made great friends, teachers and learned many new things. One day Maliyah started to get dark circles under her eyes; As if someone had hit her in the face! Her teacher asked me what was wrong but I myself was unsure and figured it was only allergies. That same week Mali was throwing up, had diarrhea and was lying around completely out of character. I called a Nurse at the Children's Primary Care Center In Pittsburgh where she usually goes for check-up's and was told to give her lots of fluids and change her diet a bit. I proceeded with what I was told being as Maliyah had a 2 year well baby visit in a few days. What the nurse had told me worked and Maliyah was good as new!
It was April 24th, 2012 the day of her check-up and boy was that day a long one. We went from having a regular check up to being in the Children's Hospital Of Pittsburgh Emergency room because Mali's blood Levels were EXTREMELY LOW and her stomach was "protruding " (according to doctors). That explains her being so tired. With only a baby bag and a purse, we found out that we where going to be staying the night. At this point I'm confused. Various Blood tests, CAT scans, ultrasounds, x-rays, Blood transfusions, antibiotics, IV's, Fluids, and biopsy's turned from one night to two weeks.
On May 3 Our lives then flashed before our eyes as the doctor's and there team come in and tell me my daughter has been diagnosed with Stage 4 Neuroblastoma that started as a tumor the size of an orange in her abdomen and that it has spread to her bone marrow. As they talk to me about what it is, the type of treatment plan they have set up for her, and the fact that its a 30%-40% chance of survival buckled me into tears; Like any other parent would do. "I Had just lost my mom to cancer 10 months prior to this and now my daughter" is all i could think about. I was literally heart broken and shocked, but I told myself that if this is the game the devil wants to start, then Maliyah, God, and I are going to play to win!
Over the next year or so Maliyah has 6 rounds of intense chemotherapy, surgery, a Bone Marrow Transplant, Radiation, and immunotherapy. In between she will receive various blood & platelet transfusions along with antibiotics. Indeed this will be a very long and stressful battle for Maliyah and I, but with the help from family, friends, others and most importantly THE LORD, I am sure this journey will go as smooth as its sapose to. We all will continue to pray, be thankful, and have full trust in the lord that Maliyah will be completely healed! I believe in miracles until god proves me otherwise!
As of this very moment (July 10th, 2012) Maliyah has had 12 Blood transfusions, 10 Platelet transfusions, and 3 rounds of chemotherapy. So far ALL of her counts have been in normal ranges, the tumor in her abdomen shrunk from 7 1/2 cm to 3 cm's and is not as active as it was before. Also, the MIBG scan (that detects if neuroblastoma is still present in the marrow) shows that they do not see anymore. If god isn't healing and creating a Miracle then I don't know what it is. She is not cured, and not in remission, but thats what our hopes are set high for now, after treatment and the future! It is hard to keep a strong positive mind set as a young single mother. Its also very hard to give up college, work and the things you love to do best. But when it comes to a child nothing is more important! I am proudly to say that maliyah has been doing great so far and thats the way that i would love to see her all the time! [emoji]9829[/emoji]
TO BE CONTINUED….
LOVE, MALIYAH
OUR STORY….
Maliyah was an over all very healthy baby. Ate good, played good, and always smiling. Yes of course there where times where she would get a fever or little cold, but after a quick doctor visit and some meds, she got better in no time. From the time she was born until Now, she loves to observe new things and interact with all walks of life. She enjoys coloring, counting, watching Dora the explorer and reading books. During the week I Had work and/or school Maliyah would be in daycare most of the day; Which she had no problem with being as she's made great friends, teachers and learned many new things. One day Maliyah started to get dark circles under her eyes; As if someone had hit her in the face! Her teacher asked me what was wrong but I myself was unsure and figured it was only allergies. That same week Mali was throwing up, had diarrhea and was lying around completely out of character. I called a Nurse at the Children's Primary Care Center In Pittsburgh where she usually goes for check-up's and was told to give her lots of fluids and change her diet a bit. I proceeded with what I was told being as Maliyah had a 2 year well baby visit in a few days. What the nurse had told me worked and Maliyah was good as new!
It was April 24th, 2012 the day of her check-up and boy was that day a long one. We went from having a regular check up to being in the Children's Hospital Of Pittsburgh Emergency room because Mali's blood Levels were EXTREMELY LOW and her stomach was "protruding " (according to doctors). That explains her being so tired. With only a baby bag and a purse, we found out that we where going to be staying the night. At this point I'm confused. Various Blood tests, CAT scans, ultrasounds, x-rays, Blood transfusions, antibiotics, IV's, Fluids, and biopsy's turned from one night to two weeks.
On May 3 Our lives then flashed before our eyes as the doctor's and there team come in and tell me my daughter has been diagnosed with Stage 4 Neuroblastoma that started as a tumor the size of an orange in her abdomen and that it has spread to her bone marrow. As they talk to me about what it is, the type of treatment plan they have set up for her, and the fact that its a 30%-40% chance of survival buckled me into tears; Like any other parent would do. "I Had just lost my mom to cancer 10 months prior to this and now my daughter" is all i could think about. I was literally heart broken and shocked, but I told myself that if this is the game the devil wants to start, then Maliyah, God, and I are going to play to win!
Over the next year or so Maliyah has 6 rounds of intense chemotherapy, surgery, a Bone Marrow Transplant, Radiation, and immunotherapy. In between she will receive various blood & platelet transfusions along with antibiotics. Indeed this will be a very long and stressful battle for Maliyah and I, but with the help from family, friends, others and most importantly THE LORD, I am sure this journey will go as smooth as its sapose to. We all will continue to pray, be thankful, and have full trust in the lord that Maliyah will be completely healed! I believe in miracles until god proves me otherwise!
As of this very moment (July 10th, 2012) Maliyah has had 12 Blood transfusions, 10 Platelet transfusions, and 3 rounds of chemotherapy. So far ALL of her counts have been in normal ranges, the tumor in her abdomen shrunk from 7 1/2 cm to 3 cm's and is not as active as it was before. Also, the MIBG scan (that detects if neuroblastoma is still present in the marrow) shows that they do not see anymore. If god isn't healing and creating a Miracle then I don't know what it is. She is not cured, and not in remission, but thats what our hopes are set high for now, after treatment and the future! It is hard to keep a strong positive mind set as a young single mother. Its also very hard to give up college, work and the things you love to do best. But when it comes to a child nothing is more important! I am proudly to say that maliyah has been doing great so far and thats the way that i would love to see her all the time! [emoji]9829[/emoji]
TO BE CONTINUED….
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^this is too dope 
i knew a youngin who went through something really similar and at the same age. it was tough. there were a lot of bad days. but lil man had a great support system with lots of friends and family. happy to say he started 6th grade this year
both of you stay strong. bless
i knew a youngin who went through something really similar and at the same age. it was tough. there were a lot of bad days. but lil man had a great support system with lots of friends and family. happy to say he started 6th grade this year
both of you stay strong. bless
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solarius49
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^this is too dope
i knew a youngin who went through something really similar and at the same age. it was tough. there were a lot of bad days. but lil man had a great support system with lots of friends and family. happy to say he started 6th grade this year
both of you stay strong. bless
too dope!
antidope
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The pictures and the story really put a smile on my face.
I donated. Sorry for being this late IDK how I'm just getting wind of this thread today
I donated. Sorry for being this late IDK how I'm just getting wind of this thread today
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Well Chemo IT'S BEEN REAL! I Hope Mali doesn't EVER have to get you again!!
So proud of my baby girl! She has officially made it thru 6 intense rounds of chemotherapy and responded well!! A huge surgery which she recovered great from!! And has been the sweetest baby to all walks of life; Keeping a smile on her face EVEN ON HER WORST DAYS!! GOD IS AMAZING!! & I THANK OUR SUPPORTERS!
[emoji]9829[/emoji] My baby is a trooper...A fighter...And by far the best thing that has ever happened to me! I love you Maliyah Denise Jones! Next up, BONE MARROW TRANSPLANT! (COMIN TO KICK YA *** TOO) #TEAM MALIYAH [emoji]9829[/emoji]
So proud of my baby girl! She has officially made it thru 6 intense rounds of chemotherapy and responded well!! A huge surgery which she recovered great from!! And has been the sweetest baby to all walks of life; Keeping a smile on her face EVEN ON HER WORST DAYS!! GOD IS AMAZING!! & I THANK OUR SUPPORTERS!
[emoji]9829[/emoji] My baby is a trooper...A fighter...And by far the best thing that has ever happened to me! I love you Maliyah Denise Jones! Next up, BONE MARROW TRANSPLANT! (COMIN TO KICK YA *** TOO) #TEAM MALIYAH [emoji]9829[/emoji]
cityofwind7
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solarius49
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HEY GUYS
please keep Maliyah in your prayers, she is back in the hospital with a fever and wont take any food
please keep Maliyah in your prayers, she is back in the hospital with a fever and wont take any food
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Man I'm gone pray for her and try and donate soon, I know it's for a good cause. I need sum good karma anyway
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she gonna be alright, g. i just have a feeling
keep us updated. bless
keep us updated. bless
whyhellothere
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hope baby girl makes a speedy recovery
dauldierce
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HEY GUYS
please keep Maliyah in your prayers, she is back in the hospital with a fever and wont take any food
Wow man. Thats a bad sign. Hope she recovers. I'll pray for her. Wow. I really hope she recovers.
whyhellothere
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any news?
solarius49
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A message from her mom!
"She's been doing ok. Were in hospital with a fever. But she hasn't had one since yesterday. She's not really eating. Has a sore throat. Won't swallow her saliva, but will drink something. Docs don't understand. Overall she's the normal maliyah! "
"She's been doing ok. Were in hospital with a fever. But she hasn't had one since yesterday. She's not really eating. Has a sore throat. Won't swallow her saliva, but will drink something. Docs don't understand. Overall she's the normal maliyah! "
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I donated, son.
whyhellothere
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i guess drinking is a start :\
hopefully she get better slowly but surely.
hopefully she get better slowly but surely.
solarius49
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thanks bro
Yeah man, we can only hope and pray. I lost my mom to cancer, so I can only imagine what its like to deal with it as a parent
elpablo21
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Damn, I left this thread with the thought she was headed towards getting better and never turning back
Unfortunately it isnt that easy.
She'll be in my thoughts and prayers
Unfortunately it isnt that easy.
She'll be in my thoughts and prayers
solarius49
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I just got this message last night:
She just spiked a fever. Has been drinking and nibbling on things, but not really able to eat like she wants to. But good thing is, she isn't drooling. She has tachycardio. Which is a fast heart rate. But that's only due to her fever. Usually goes down as the fever does. She has a broviac which is a permanent line in the chest and into a major artery in the heart where she gets her meds thru. But it broke for the 5th time. Because repairing the line is a very sterilized procedure, sometimes an infection can occur. That could be why she's got a fever. Everytime a cancer patient (well at least in pediatric) gets a fever they keep you in the hospital for at least 24hrs after the fever and 48 HRs for blood cultures to come back. Another reason she's sick is because her counts are low. Everyone needs white blood cells to help fight infections. She has exactly 0! That is BC she just received chemotherapy. Every time someone receives chemo, usually 10-12 days after your counts will drop making u more prone to infection ..so there's a little background /update on things. Lol sorry if its a little much. Just want ppl to understand as I do n not always feel bad. Things will be ok. Prayer truely helps! PLEASE RELAY THIS TO NIKE TALK! THANKS! 9
She just spiked a fever. Has been drinking and nibbling on things, but not really able to eat like she wants to. But good thing is, she isn't drooling. She has tachycardio. Which is a fast heart rate. But that's only due to her fever. Usually goes down as the fever does. She has a broviac which is a permanent line in the chest and into a major artery in the heart where she gets her meds thru. But it broke for the 5th time. Because repairing the line is a very sterilized procedure, sometimes an infection can occur. That could be why she's got a fever. Everytime a cancer patient (well at least in pediatric) gets a fever they keep you in the hospital for at least 24hrs after the fever and 48 HRs for blood cultures to come back. Another reason she's sick is because her counts are low. Everyone needs white blood cells to help fight infections. She has exactly 0! That is BC she just received chemotherapy. Every time someone receives chemo, usually 10-12 days after your counts will drop making u more prone to infection ..so there's a little background /update on things. Lol sorry if its a little much. Just want ppl to understand as I do n not always feel bad. Things will be ok. Prayer truely helps! PLEASE RELAY THIS TO NIKE TALK! THANKS! 9
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Damn sucks that's she is back in there
She'll be good tho. Lil girl is strong if she made it this far
Her and her family will be in my prayers
Bless
She'll be good tho. Lil girl is strong if she made it this far
Her and her family will be in my prayers
Bless
antidope
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This. Its hard to read this I cant imagine how her mom feels.
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Stay strong baby girl... you will overcome & get better
